Home » July 2013 » Playing Catch Up

Playing Catch Up

This week I heard words that, to be honest, I’d given up on waiting to hear long ago. Three little words that astounded me.

“Might catch up”

When Jacob stopped receiving play development therapy from portage we were referred to a local outreach service run by a charity called BIBIC, a charity that helps children with brain related conditions. We’ve just had our second visit from our lovely therapist, the previous one being around 6 months ago; session 1 involved lots of questions for me and a number of play based assessment activities for Jacob, in session 2 the therapist ran through her observations and findings and suggested a number of activities we can do daily with Jacob to help his sensory processing problems and move his development forward.

During the feedback the therapist showed me a list of all the things Jacob couldn’t do at the last visit that he could do now and showed me that Jacob had moved forward almost 4 months of development in the last 6 months! His fine and gross motor skills previously measured at around 15 months are now at 18/19 months level. Much as I know that he is progressing, I found proof of this large leap forward  incredible. It was then that the therapist said the astounding words: “if he carries on like this, as the developmental milestones become smaller, he will gradually catch up”. I said “Do What? Sorry? He might catch up?” She smiled, nodded and stressed “He may do”. I know it’s a big might, and I am mostly reconciled to that that he is unlikely to ever really talk , but the fact that he is showing such progress in his motor skills is just so exciting regardless of whether this level of  progress will continue or not.

This news has really motivated me to continue with the hard work. For the first two years of Jacob’s life I felt like I was knocking on a door only to see it open a tiny bit and then slam back in my face. It was relentlessly disheartening and so many times I felt like giving up. I felt as if all the work we put in was achieving nothing. It’s amazing to watch children without disabilities just do stuff, they just pick it up and off they go. Everything with Jacob has to be taught, over-learnt and taught again, hand over hand. It is unrelenting repetition and sometimes it feels if you are no further forward after months of work. Even with proof of fantastic progress, I would be lying if  said I didn’t often feel resentful of the fact that so much of our life is dominated by carrying out Jacob’s therapy; but with news like this? Well, I just need a nightly big glug of wine and a vow to try again tomorrow. He’s trying so hard, so I can’t give up

I am so grateful that we’ve had this chance to work with a a charity that has let us see Jacob is moving forwards and that he is doing well in his own way. So it saddened me greatly to receive news that the BIBIC outreach programme is finishing due to lack of funding. This will be Jacob’s second and last visit and programme. We’re not giving up though, we’re off to find a new and exciting way to maximise his progress as he seems to be on a roll at the moment. More news of that anon……!

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12 thoughts on “Playing Catch Up

  1. Wow. What a fabulous thing to hear. That is amazing progress. You must be so proud. And I can only imagine the relief. All that work. All that feeling like you’re banging your head against a brick wall. Boo’s physio said to me, it’s when you feel like giving up that you often get the biggest pay back and your post persuades me that I mustn’t give up either. I hope Boo proves as determined and tenacious as Jacob.

    • Don’t give up ever! I found Jacob’s progress got more noticeable once he reached about 2.5 years. Before then it was incredibly slow and every bit of progress was hard won and i felt as if I spent every day taching him only to have to do it all again the next day and the next day and the next day. Jacob is lucky in that he has the sort of personality that wants to be involved, he wants to give things a go and so even if he gives up easily or can’t do it, he will at least have a try. I think that has helped him

  2. It sounds like Jacob is doing amazingly well and hes coming on in leeps and bounds (how ever small the leaps and bounds are), progress is progress! I know from doing very much the same with my Bruiser how difficult it is and how much hard work it takes but how amazing is it when you see it paying off?! We have noticed an amazing improvement in Bruisers development since he learnt to communicate using makaton (hes non verbal, but that is coming now too). suddenly there is a whole world to discover! ##ssamazingachievements xx

    • It is, Jacob is also non verbal and uses Makaton, he really really wants to communicate so that’s the one area he’s really driven in, sadly I think his brain damage has severely affected is ability to control his mouth and tongue, I don’t think he’ll ever do more than say the odd word or two. :-(

  3. It’s funny, you and I wrote about much of the same thing this week, and both posted it on the Small Steps Amazing Achievements linky… I also wrote about getting the outside confirmation that all the sacrifices and hard work are worth it, and you / he are making progress….
    It sounds like he is making great progress, and that is indeed wonderful news! xx

    • Wow! Must go over a read your blog post then! I’m so behind with my blog reading at the moment but I will get over to you, I promise.

      It’s an amazing possibility but a part of me is really sceptical that it will happen. Not want to come crashing down to a dfferent kind of reality I guess.

  4. This post really touched me, such fantastic magical words. I felt like this when the word potential was used in reference to Ethan. Its very sad to hear the charity will no longer be able to help. Things like that not only help our children but also us.

    Thanks for linking up with Small Steps Amazing Achievements :0)
    x

  5. Pingback: Playing catch up | SWAN UK

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